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Current Members

Founded in 2012 as Vision 2020, the Epilepsy Leadership Council started with 20 organizations and has grown to more than 60 members today. We welcome nonprofit organizations to join. Email elc@aesnet.org to learn more.

Aicardi Syndrome Foundation

American Clinical Neurophysiology Society

American Epilepsy Society

Batten Disease Support and Research Association

CACNA1A Foundation

Centers for Disease Control and Prevention

Charlie Foundation for Ketogenic Therapies

Chelsea’s Hope Lafora Children Research Fund

Child Neurology Foundation

CURE Epilepsy

Cure GABA A Variants

Danny Did Foundation

Dravet Syndrome Foundation
dup15q Alliance logo

Dup 15q Alliance

Empowering Epilepsy

Epilepsy Advocacy Network

Epilepsy Alliance America

Epilepsy Alliance Louisiana

Epilepsy Foundation

Epilepsy Reach Foundation
epilepsy services in new jersey logo

Epilepsy Services of New Jersey

Epilepsy Support Network of Orange County

Epilepsy Wellness Advocates

Families SCN2a Foundation

Finding a Cure for Epilepsy and Seizures (FACES)

Glut1 Deficiency Foundation

Hemispherectomy Foundation

HHV-6 Foundation

Hope for Hypothalamic Hamartomas

Hope for ULD

Hope4Harper

International Foundation for CDKL5 Research

International League Against Epilepsy

International SCN8A Alliance

Jack Pribaz Foundation (KCNq2)

Joanna Sophia Foundation

KCNQ2 Cure Alliance

Keto Hope Foundation

Koolen-de Vries Syndrome Foundation

Lennox Gastaut Foundation

Logan Jett Research Foundation, Inc.

My Epilepsy Story

National Association of Epilepsy Centers

National Institute of Neurological Disorders and Stroke

NORSE Institute

Paul’s Purple Warriors, New Jersey

PCDH19 Alliance

Pediatric Epilepsy Research Consortium

Pediatric Epilepsy Surgery Alliance

Phelan-McDermid Syndrome Foundation

Project 8P

Ring14 USA Outreach, Inc.

SLC6A1 Connect

Sofie’s Journey/Epilepsy Awareness Day

South Carolina Advocates for Epilepsy

SYNGAP Research Fund

TESS Research Foundation

The Anita Kaufmann Foundation (Purple Day, Every Day)

The Bow Foundation

The Cameron Boyce Foundation

The CUTE Syndrome Foundation

TSC Alliance

Veterans’ Health Administration Epilepsy Centers of Excellence

YWAHG Research Foundation
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