Epilepsy Leadership Council


The ELC, formerly known as Vision 2020, was formed in 2012 with 20 of organizations. It has now grown to over 60 organizations. 

Nonprofit organization are welcome to join. Email elc@aesnet.org for more information. 



Current Members

Aicardi Syndrome Foundation

American Clinical Neurophysiology Society

American Epilepsy Society

Batten Disease Support and Research Association

CACNA1A Foundation

Centers for Disease Control and Prevention

Charlie Foundation for Ketogenic Therapies 

Chelsea's Hope Lafora Children Research Fund

Child Neurology Foundation

CURE Epilepsy

Cure GABA A Variants

Danny Did Foundation

Dravet Syndrome Foundation

Dup 15q Alliance 

Empowering Epilepsy

Epilepsy Advocacy Network

Epilepsy Alliance America

Epilepsy Alliance Louisiana

Epilepsy Foundation

Epilepsy Reach Foundation 

Epilepsy Support Network of Orange County 

Epilepsy Wellness Advocates

Families SCN2a Foundation

Finding a Cure for Epilepsy and Seizures (FACES)

Glut1 Deficiency Foundation

Hemispherectomy Foundation

HHV-6 Foundation

Hope for Hypothalamic Hamartomas 

Hope for ULD 


International Foundation for CDKL5 Research

International League Against Epilepsy

International SCN8A Alliance

Jack Pribaz Foundation (KCNq2)

KCNQ2 Cure Alliance

Keto Hope Foundation

Koolen-de Vries Syndrome Foundation

Lennox-Gastaut Syndrome (LGS) Foundation

Logan Jett Research Foundation, Inc.

My Epilepsy Story

National Association of Epilepsy Centers

National Institute of Neurological Disorders and Stroke

NORSE Institute

Paul's Purple Warriors, New Jersey

PCDH19 Alliance

Pediatric Epilepsy Research Consortium

Pediatric Epilepsy Surgery Alliance

Phalen-McDermid Syndrome Foundation

Project 8P

Ring14 USA Outreach, Inc.

Seizure Tracker

SLC6A1 Connect

Sophie's Journey/Epilepsy Awareness Day

South Carolina Advocates for Epilepsy

SYNGAP 1 Foundation 

SYNGAP Research Fund

TESS Research Foundation

The Anita Kaufmann Foundation (Purple Day, Every Day)

The Bow Foundation

The Cameron Boyce Foundation

The CUTE Syndrome Foundation

TSC Alliance

Veterans’ Health Administration Epilepsy Centers of Excellence

YWHAG Research Foundation

The Epilepsy Leadership Council is a component of the American Epilepsy Society.

(e) elc@aesnet.org

(p) 312-883-3800


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