Working Groups
Collaborative committees driving ELC's advocacy and communication efforts
Active Working Groups
Our working groups bring together experts from across member organizations to coordinate advocacy efforts, develop resources, and strengthen communication within the epilepsy community.
Advocacy Committee
The Advocacy Committee leads the ELC's efforts in federal advocacy. This includes leading the development of the ELC's policy agenda, monitoring and sharing federal sign-on opportunities, and developing resources and education to support ELC members in advocacy. The advocacy committee held a series of webinars in summer 2024 and most recently developed a toolkit to encourage ELC members to invite their respective Congressional representatives to join the Epilepsy Caucus.
Committee Members:
- Johanna Gray (Co-lead), National Association of Epilepsy Centers
- Laura Weidner (Co-lead), Epilepsy Foundation
- Gabi Conecker, International SCN8A Alliance
- Tanya Fleming, Epilepsy Wellness Advocates
- Lisa Gallipoli, Epilepsy Alliance America
- JayEtta Hecker, Decoding Developmental Epilepsies
- Kim Hendery, Child Neurology Foundation
- Laura Lubbers, CURE Epilepsy
- Jane McCabe, Pediatric Epilepsy Research Consortium
- Kari Rosbeck, TSC Alliance
Communications Committee
The Communications Committee manages the ELC's communication strategy and activities. This includes maintaining the ELC's website content, developing ELC newsletters, and communicating ELC's activities to members and external partners.
Committee Members:
- Christina SanInocencio, Coalition to Cure CHD2 (lead)
- Cassie Corral, Epilepsy Alliance America
- Tanya Flemming, Epilepsy Wellness Advocates
- Victoria Kloss, American Epilepsy Society
- Mary Anne Meskis, Dravet Syndrome Foundation